Secondary progressive MS

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Secondary progressive MS looks at how this type of MS is identified and diagnosed, and at how a range of health professionals can you help manage the condition.

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Over time, many people originally diagnosed with relapsing remitting multiple sclerosis will find that the pattern of their MS has changed and that they now have a type known as secondary progressive MS or SPMS.

This book is written as an introduction to secondary progressive MS – both for those living with the condition and for their family and friends.

It contains information on these key topics:

  • What is secondary progressive MS?
  • Diagnosing secondary progressive MS
    • Things that can make the change hard to spot
    • Sustained progression
    • How is secondary progressive MS diagnosed?
    • Managing the transition
  • The transition to secondary progressive MS
    • The effect of words
    • What the future holds
    • Stopping disease modifying drugs
    • The role of the MS nurse
  • Coming to terms with the transition to secondary progressive MS
    • Gaining psychological support
    • Acceptance and commitment therapy (ACT)
    • Positive thoughts on secondary progressive MS
  • Managing secondary progressive MS
    • Drug treatment
    • Steroids and secondary progressive MS
    • Self-management
    • MS nurses
    • Support from specialist health services
    • Rehabilitation
    • Prevention of complications
  • Research into secondary progressive MS
    • Collaboration in research
    • Future research priorities
    • Neuroprotection
    • Repairing and replacing myelin
    • Trials of disease modifying drugs
  • Tips for coping with secondary progressive MS
  • Living with secondary progressive MS
    • Living well – health awareness, activity, diet
    • Work
    • Welfare benefits
    • Maintaining social relationships
    • Reflections on living with secondary progressive MS
  • More information
    • Online support groups
    • Benefits and legal advice
    • Getting around
    • Equipment and adaptations
    • Relationship support
    • Health and social care information and carer support
    • Holidays
Format

Printed publication, Digital download

Publication information

Date published: October 2018
Pages: 64
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