Primary progressive MS

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Primary progressive MS explores the physical and emotional aspects of living with primary progressive multiple sclerosis and the ongoing management of the condition.

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Primary progressive MS explores the physical and emotional aspects of living with primary progressive multiple sclerosis and the ongoing management of the condition.

It contains information on these key topics:

  • Key information at a glance
  • What is primary progressive MS?
  • How primary progressive MS differs from 13 the other forms of MS
    • Clinical features
    • Pathological features
  • Diagnosing primary progressive MS
    • How is primary progressive MS diagnosed?
    • Tests that may be carried out to diagnose primary progressive MS
  • Symptoms of primary progressive MS
    • Symptoms commonly seen in primary progressive MS
    • Other symptoms that may be experienced
    • Complications and other concerns
  • Progression
    • Predicting how primary progressive MS might progress
  • Management of primary progressive MS
    • Drug treatment
    • Rehabilitation medicine
    • Prevention of complications
    • General health and wellbeing
    • Complementary and alternative therapies
    • Self-management
  • Trials in primary progressive MS
    • Challenges to trials in primary progressive MS
    • Past and current trials
    • Questions still to be answered
    • Future research priorities
  • Living with primary progressive MS
    • The MS journey
    • Impact of diagnosis
    • Acceptance and commitment therapy (ACT)
    • Coping with increasing disability and maintaining independence
    • Maintaining social relationships
    • Working with primary progressive MS
    • Needing more help
    • Final thoughts
  • Sources of support
    • Online support groups
    • Benefits and legal advice
    • Getting around
    • Equipment and adaptations
    • Relationship support
    • Health and social care information and carer support
    • Holidays
Format

Printed publication, Digital download

Publication information

Date published: October 2018
Pages: 92
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