Primary progressive MS explores the physical and emotional aspects of living with primary progressive multiple sclerosis and the ongoing management of the condition.
It contains information on these key topics:
- Key information at a glance
- What is primary progressive MS?
- How primary progressive MS differs from 13 the other forms of MS
- Clinical features
- Pathological features
- Diagnosing primary progressive MS
- How is primary progressive MS diagnosed?
- Tests that may be carried out to diagnose primary progressive MS
- Symptoms of primary progressive MS
- Symptoms commonly seen in primary progressive MS
- Other symptoms that may be experienced
- Complications and other concerns
- Progression
- Predicting how primary progressive MS might progress
- Management of primary progressive MS
- Drug treatment
- Rehabilitation medicine
- Prevention of complications
- General health and wellbeing
- Complementary and alternative therapies
- Self-management
- Trials in primary progressive MS
- Challenges to trials in primary progressive MS
- Past and current trials
- Questions still to be answered
- Future research priorities
- Living with primary progressive MS
- The MS journey
- Impact of diagnosis
- Acceptance and commitment therapy (ACT)
- Coping with increasing disability and maintaining independence
- Maintaining social relationships
- Working with primary progressive MS
- Needing more help
- Final thoughts
- Sources of support
- Online support groups
- Benefits and legal advice
- Getting around
- Equipment and adaptations
- Relationship support
- Health and social care information and carer support
- Holidays
